Prader-Willi Syndrome Association New Zealand is a registered charity, and a parent support network that aims to enhance the lives of those with Prader-Willi syndrome in New Zealand by providing advocacy, education and support services. They also hope to increase public awareness and understanding of PWS.
Services:
- Advocacy
- Campaigning on issues
- Increasing awareness/understanding
- can provide individual advocacy services as required
- Education
- Provide information and resources to families, carers, schools, service providers and other professionals
- training sessions for schools and residential care suppliers
- Online Resources
- PWSA Library
- Seminars with specialist presentation
- co-organise the Asia-Pacific PWS Conference held every 3 years
- Support
- Contactable at any time via website or freephone helpline
- Connect families (and children of a similar age) in your area
- Host family support events
- Biennial (every other year) family camps
- Biennial young families weekends and youth weekends
- regular regional family days
- Facebook page
- Online support group
